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Starting a thread on this because it keeps coming up in ones and twos: Not everyone gets the quiet, and that is worth saying
I have been sitting on this for a month.
I have written down what has actually happened, in order, because I find that more useful than my summary of it.
What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.
Thanks all. Genuinely.
85
Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.
9
Building on what the opening post wrote rather than answering the original question.
The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.
16me too 5
Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.
23
I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.
15
Gently disagreeing with the reply above, or rather adding the other half of it.
Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?
10me too 2
My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.
10
No advice, just recognition. That sounds exhausting and I am sorry you are in it.
13
What the reply above described happened to me too, in a slightly different order.
I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.
6
Please do not read the comments under news articles about this. I lost a fortnight to that.
13
I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.
8
What helped was lowering my own expectations of the week rather than trying to hold the week together.
10
My experience was very boring, which I offer as data. Some of us just get a dull time of it.
10
Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.
14me too 3
the reply above — yes, and the bit that took me longest to accept was the next part.
I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.
6
Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.
11
the reply above said something I want to sit with for a second.
Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.
8
Reading the reply above, I recognised more of that than I expected to.
Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.
13
I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.
11
Yes to the burping. It is real, it is unbeautiful, and it does settle.
11me too 6
the reply above — yes, and the bit that took me longest to accept was the next part.
Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.
24
the reply above said something I want to sit with for a second.
It got worse before it got better for me, which I wish someone had said. About ten days of worse.
13