My reflux disease got much worse and we changed plan

Started 5 July 2025 · 18 replies · 174 hearts · read 2.1k times

PosyChichester, UK · 5 July 2025

about a year ago

My reflux disease got much worse and we changed plan — putting it in its own thread so it does not get lost in the check-in.

I have avoided asking about this for six weeks out of pure embarrassment.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

BramberSteyning, UK

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

BrackenHexham, UK

the opening post said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

BryherIsles of Scilly, UK

What helped was lowering my own expectations of the week rather than trying to hold the week together.

8me too 9

TomásFacilitatorLisbon, Portugal

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

NyalaAddis Ababa, ET

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

NoraDublin, IE

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

BettinaGraz, AT

Building on what the reply above wrote rather than answering the original question.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

AleksLjubljana, SI

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

7me too 5

ÖzlemIzmir, TR

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

5me too 1

EphraimBrooklyn, NY

#10

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

GethinMerthyr Tydfil, UK

#11

the reply above — yes, and the bit that took me longest to accept was the next part.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

PosyChichester, UK

#12

Yes to the burping. It is real, it is unbeautiful, and it does settle.

9me too 1

BramberSteyning, UK

#13

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

BrackenHexham, UK

#14

What the reply above described happened to me too, in a slightly different order.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

BryherIsles of Scilly, UK

#15

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

9me too 6

BibiRabat, MA

#16

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

TomásFacilitatorLisbon, Portugal

#17

Gently disagreeing with the reply above, or rather adding the other half of it.

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

NoraDublin, IE

#18

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.