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Gastro history

My notes say delayed gastric emptying and my new prescriber had never seen them

Started 3 December 2025 · 8 replies · 362 hearts · read 4.3k times

BexPlymouth, UK · 3 December 2025
8 months ago

Navy family. Moving every eighteen months. Plymouth now, Faslane before that, Portsmouth before that, and my medical records have never once arrived anywhere at the same time as I have.

Here is what happened and I think it is a story about paperwork rather than about medicine.

In 2019 I had six months of investigations at a hospital in Hampshire. The upshot was a diagnosis of mildly delayed gastric emptying — not severe, not gastroparesis in the full sense, but documented, with a scan and a letter, and I was told at the time to mention it if I was ever offered anything that slows the stomach down.

I mentioned it. At my first appointment here in September I said the words. My prescriber wrote something down, did not have the letter, and said we would keep an eye on it. I assumed that meant she had looked at something. She had not, because it was not there — my records from Hampshire had gone to a surgery in Scotland that I left in 2021.

By week five I was very full, very early, for a very long time. Not nausea exactly. A brick under the ribs from lunchtime until bedtime, and food coming back up hours after I had eaten it, which is a specific and unpleasant thing that I had not had since 2019 and recognised instantly.

What sorted it out: I rang the Hampshire hospital myself, asked for a copy of my own letter, and it arrived in eleven days. I took it in. My prescriber read it, said ah, and everything changed in that appointment — a pause, a referral back to gastroenterology, and a plan we made together instead of one she was guessing at.

So this is a post about getting your own records. Nobody tells you that you can just ring up and ask.

121

MiraFacilitatorRotterdam, Netherlands
#1

Bex, thank you for this. I hold bloodwork-buddies and half of what we do in there is exactly this — helping people get hold of, and then read, documents that are about them.

You can ask for your own records in most systems and it is a routine request rather than a favour. What tends to work: ask the department that did the investigation rather than the surgery, ask for the specific letter or report by date if you know it, and put in writing that it is a request for your own health record.

The other thing your post shows is why a spoken mention is not the same as a document. You did say the words in September. It is not your fault that they went nowhere, and it is worth knowing for everybody with a history: if it matters, get the paper into the room.

52me too 10

TomásFacilitatorLisbon, Portugal
#2

Two clinical notes and then the thread is yours.

First: the picture you describe — early and prolonged fullness, food returning hours later — is precisely why anyone with a documented motility problem should have that on the table before starting, and you tried to do that. This is a systems failure, not a patient one.

Second, for others reading with a gastro history: the reasonable version of this conversation is not you cannot take this. It is a conversation about whether, how slowly, and what you would both watch for. Plenty of people with gut histories do fine. The point is that it should be a decision somebody made on purpose.

47me too 8

MintaColchester, UK
#3

Army wife, moving again in spring, and I could have written your first paragraph word for word. Four surgeries in nine years and a paper trail that arrives about eight months behind me.

What I do now: I keep my own folder. Physical, in the filing box with the passports. Every letter, every result, every discharge summary. When I register somewhere new I take it with me to the first appointment and put it on the desk. It has changed how those appointments go entirely.

55me too 12

VivLuton, UK
#4

Luton. Reflux was my whole first year and it turns out I had a hiatus hernia diagnosed in 2016 that I had genuinely forgotten about, because it had never troubled me.

Found the letter in a drawer in month three. Took it in. Same ah as yours. I do not think anybody was careless — I had not remembered it myself, so how would she have known.

41me too 7

SaskiaThe Hague, NL
#5

The Hague, two languages of medical jargon. I would add one thing for anybody in a similar position: ask for the report and not the summary. The summary said I had mild upper GI symptoms investigated 2018. The report had the actual findings, the numbers, and the consultant’s recommendation, which was the useful part.

39me too 5

BrennaEnniskillen, NI
#6

Enniskillen. Border county, two health systems, which is its own particular joy. My records exist in two places and agree with each other about almost nothing.

Bex, the eleven days is worth noting. Everybody assumes it will take months and puts off asking. Mine took a fortnight and one phone call.

36me too 6

CassWakefield, UK
#7

Ex-army, structure helps me, Wakefield. Folder, index, dividers, and yes I know exactly how that sounds.

It got me a diagnosis two years earlier than I would otherwise have had, because I could show a consultant a five-year pattern in ninety seconds. Whatever your view of me and my dividers, the ninety seconds is real.

44me too 9

BexPlymouth, UK
#8

Folder in the box with the passports. Doing it this weekend, and I have three house moves' worth of paper in two carrier bags to get through, which will be a grim Sunday and worth it.

Gastroenterology appointment came through for the twenty-second of January. Still paused until then, which I have made peace with, mostly because it was a decision somebody took on purpose rather than a thing that happened to me.

48me too 5