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Long covid and fatigue

What improved and what did not

Started 20 June 2026 · 13 replies · 75 hearts · read 1.6k times

TallisEly, UK · 20 June 2026
4 weeks ago

A question rather than an update: What improved and what did not

Before anyone says it: yes, I have an appointment booked. I would still like to hear from people who have had this.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

25

WilfStoke, UK
#1

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

3

RowanInverness, UK
#2

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

9

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

9me too 5

BoWhitby, UK
#4

Reading the reply above, I recognised more of that than I expected to.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

5

RonanBelfast, NI
#5

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

6

RillaAberdeen, UK
#6

Reading the reply above, I recognised more of that than I expected to.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

4

DuncanPerth, UK
#7

the reply above — yes, and the bit that took me longest to accept was the next part.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

5

NikitaYerevan, AM
#8

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

5me too 9

NkemPort Harcourt, NG
#9

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

6me too 8

WellsChester, UK
#10

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

4

SaraOslo, NO
#11

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

4

the reply above — yes, and the bit that took me longest to accept was the next part.

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

12me too 9

TacitaRome, IT
#13

Yes to the burping. It is real, it is unbeautiful, and it does settle.

3