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Long covid and fatigue

Slowing the schedule right down with my prescriber

Started 6 March 2026 · 18 replies · 135 hearts · read 2.1k times

TabbyMargate, UK · 6 March 2026
4 months ago

Slowing the schedule right down with my prescriber Writing it down partly to work out what I actually think.

I have avoided asking about this for six weeks out of pure embarrassment.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

The thing that has surprised me most is how much of this is about other people rather than about me.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Sorry for the length. If anyone has been here, I would very much like to hear it.

45

IdaRotterdam, NL
#1

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

5me too 5

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

9

PatrickLimerick, IE
#3

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

7

NkosiJohannesburg, ZA
#4

the opening post — yes, and the bit that took me longest to accept was the next part.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

6

FionnualaDundalk, IE
#5

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

9

MaritGroningen, NL
#6

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

8

NkemPort Harcourt, NG
#7

Reading the reply above, I recognised more of that than I expected to.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

8

NolCork, IE
#8

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

6me too 9

BibiRabat, MA
#9

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

9

HattieExeter, UK
#10

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

8

DillyNewport, UK
#11

the reply above said something I want to sit with for a second.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

7

TeganNewport, UK
#12

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

4

OndineLausanne, CH
#13

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

6

PersisBristol, UK
#14

Reading the reply above, I recognised more of that than I expected to.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

8me too 2

BramSheffield, UK
#15

I did exactly the same and felt terrible about it. You have not done anything wrong.

4me too 1

NazneenDhaka, BD
#16

Building on what the reply above wrote rather than answering the original question.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

8

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

17

AleksLjubljana, SI
#18

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

6