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Nausea and eating

Cold food went down when hot food would not

Started 31 March 2025 · 22 replies · 210 hearts · read 2.1k times

GabePhoenix, AZ · 31 March 2025
1.3 years ago

A question rather than an update: Cold food went down when hot food would not

Before anyone says it: yes, I have an appointment booked. I would still like to hear from people who have had this.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

70

RayBarnsley, UK
#1

I did exactly the same and felt terrible about it. You have not done anything wrong.

8

CasperOdense, DK
#2

Reading the opening post, I recognised more of that than I expected to.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

9

TomásFacilitatorLisbon, Portugal
#3

the reply above — yes, and the bit that took me longest to accept was the next part.

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

18

PerlaManila, PH
#4

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

11me too 7

Bell ANorwich, UK
#5

the reply above — yes, and the bit that took me longest to accept was the next part.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

8me too 6

BryonyMalvern, UK
#6

What helped was lowering my own expectations of the week rather than trying to hold the week together.

7

TemSouthend, UK
#7

Please do not read the comments under news articles about this. I lost a fortnight to that.

10

BramleyBath, UK
#8

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

6

IlseMaastricht, NL
#9

the reply above — yes, and the bit that took me longest to accept was the next part.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

11

GwynethAberdare, UK
#10

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

7me too 1

MossHebden Bridge, UK
#11

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

8

BrynAberystwyth, UK
#12

the reply above — yes, and the bit that took me longest to accept was the next part.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

6

MimiHong Kong
#13

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

11

WilfStoke, UK
#14

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

4me too 9

RenataKraków, PL
#15

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

9

NoleneDurban, ZA
#16

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

7

DaraAthlone, IE
#17

Building on what the reply above wrote rather than answering the original question.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

10me too 4

OrvalWinnipeg, CA
#18

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

8

GabePhoenix, AZ
#19

Reading the reply above, I recognised more of that than I expected to.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

12me too 7

RayBarnsley, UK
#20

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

10

TomásFacilitatorLisbon, Portugal
#21

the reply above said something I want to sit with for a second.

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

20

VivLuton, UK
#22

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

10