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My fourteen-year-old noticed and is worried

Started 11 July 2024 · 23 replies · 269 hearts · read 3.1k times

BobbieRochdale, UK · 11 July 2024
2 years ago

A question rather than an update: My fourteen-year-old noticed and is worried

Anyone else navigating this? I feel as though every piece of advice I read was written for someone with a completely different week.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

The thing that has surprised me most is how much of this is about other people rather than about me.

Not looking for a plan. Just company and whatever anyone has found.

90

BramwellNottingham, UK
#1

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

14

SindriReykjavík, IS
#2

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

7

PoppyLeeds, UK
#3

Yes to the burping. It is real, it is unbeautiful, and it does settle.

12

WrenFacilitatorLeeds, UK
#4

Gently disagreeing with the reply above, or rather adding the other half of it.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

19

MarkCoventry, UK
#5

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

9

LuPreston, UK
#6

the reply above said something I want to sit with for a second.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

7

BexPlymouth, UK
#7

Building on what the reply above wrote rather than answering the original question.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

11

OrphBath, UK
#8

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

8

OrvalWinnipeg, CA
#9

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

7

IslaOban, UK
#10

Gently disagreeing with the reply above, or rather adding the other half of it.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

12me too 7

CarlMiddlesbrough, UK
#11

I did exactly the same and felt terrible about it. You have not done anything wrong.

7me too 7

NanNeath, UK
#12

Reading the reply above, I recognised more of that than I expected to.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

12

GillyWorcester, UK
#13

the reply above said something I want to sit with for a second.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

8

PipBristol, UK
#14

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

11

TasnimBradford, UK
#15

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

10

OskarWarsaw, PL
#16

What helped was lowering my own expectations of the week rather than trying to hold the week together.

14me too 1

NualaArmagh, NI
#17

Please do not read the comments under news articles about this. I lost a fortnight to that.

8

ZenBristol, UK
#18

Building on what the reply above wrote rather than answering the original question.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

15

HannahSheffield, UK
#19

the reply above said something I want to sit with for a second.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

11

NemoneLewes, UK
#20

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

14

BobbieRochdale, UK
#21

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

11

WrenFacilitatorLeeds, UK
#22

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

29me too 6

SindriReykjavík, IS
#23

Building on what the reply above wrote rather than answering the original question.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

13