Why animal data is not a small version of human data

Started 4 December 2024 · 23 replies · 285 hearts · read 4.7k times

AbramAmsterdam, NL · 4 December 2024

1.6 years ago

A question rather than an update: Why animal data is not a small version of human data

Evidence question. I would rather have an honest "we do not know" than a confident answer.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

TamarPlymouth, UK

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

SunilFacilitatorBirmingham, UK

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

NevGrimsby, UK

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

PolaGdańsk, PL

Gently disagreeing with the opening post, or rather adding the other half of it.

Please do not read the comments under news articles about this. I lost a fortnight to that.

11me too 5

TobinCork, IE

What helped was lowering my own expectations of the week rather than trying to hold the week together.

WellsChester, UK

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

MableBolton, UK

What the reply above described happened to me too, in a slightly different order.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

10me too 9

TacitaRome, IT

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

IdrisCardiff, UK

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

IvorLlanelli, UK

#10

Gently disagreeing with the reply above, or rather adding the other half of it.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

8me too 8

FabianBasel, CH

#11

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

BunnyWeston-super-Mare, UK

#12

What the reply above described happened to me too, in a slightly different order.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

FlossieShrewsbury, UK

#13

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

AbramAmsterdam, NL

#14

Yes to the burping. It is real, it is unbeautiful, and it does settle.

TamarPlymouth, UK

#15

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

MorayElgin, UK

#16

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

NevGrimsby, UK

#17

the reply above said something I want to sit with for a second.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

9me too 7

PolaGdańsk, PL

#18

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

TobinCork, IE

#19

Gently disagreeing with the reply above, or rather adding the other half of it.

I did exactly the same and felt terrible about it. You have not done anything wrong.

12me too 5

WellsChester, UK

#20

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

MableBolton, UK

#21

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

SunilFacilitatorBirmingham, UK

#22

Gently disagreeing with the reply above, or rather adding the other half of it.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

IdrisCardiff, UK

#23

Building on what the reply above wrote rather than answering the original question.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

13me too 8