SUMMIT and heart failure with preserved ejection fraction

Started 1 August 2025 · 19 replies · 177 hearts · read 3.6k times

SaoirseKilkenny, IE · 1 August 2025

12 months ago

Something I have been sitting with: SUMMIT and heart failure with preserved ejection fraction Not looking for advice so much as other people's experience.

Putting this here because I do not want to be sold anything, I want to know what is actually established.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

Not looking for a plan. Just company and whatever anyone has found.

NadjaBelgrade, RS

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

SunilFacilitatorBirmingham, UK

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

21me too 5

OskarWarsaw, PL

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

PrunellaBury St Edmunds, UK

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

AmmiKarachi, PK

Please do not read the comments under news articles about this. I lost a fortnight to that.

5me too 1

TiborBratislava, SK

What the reply above described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

PamSouthport, UK

Gently disagreeing with the reply above, or rather adding the other half of it.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

StellanMalmö, SE

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

EphraimBrooklyn, NY

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

PádraigGalway, IE

#10

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

PriyaReading, UK

#11

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

NissaHaifa, IL

#12

the reply above — yes, and the bit that took me longest to accept was the next part.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

BeaDublin, IE

#13

What helped was lowering my own expectations of the week rather than trying to hold the week together.

8me too 5

NkemPort Harcourt, NG

#14

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

JuniperMachynlleth, UK

#15

Reading the reply above, I recognised more of that than I expected to.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

TildaCambridge, UK

#16

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

GwendaEbbw Vale, UK

#17

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

SunilFacilitatorBirmingham, UK

#18

the reply above said something I want to sit with for a second.

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

13me too 1

DoraUtrecht, NL

#19

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.