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Restarting after a break

I kept my journal through the gap and it helped enormously

Started 10 May 2025 · 22 replies · 219 hearts · read 2.6k times

ZoraSarajevo, BA · 10 May 2025
about a year ago

Starting a thread on this because it keeps coming up in ones and twos: I kept my journal through the gap and it helped enormously

I have been reading here for a few weeks and have not posted, so this is me posting.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Sorry for the length. If anyone has been here, I would very much like to hear it.

73

OttilieCheshire, UK
#1

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

12me too 8

Gwen DAberystwyth, UK
#2

What the opening post described happened to me too, in a slightly different order.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

7

MableBolton, UK
#3

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

9

BenediktFacilitatorVienna, Austria
#4

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

15

InêsPorto, PT
#5

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

11

BobbieRochdale, UK
#6

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

13me too 2

NerysRhyl, UK
#7

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

9

NikolaiSofia, BG
#8

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

11

ZoraSarajevo, BA
#9

the reply above — yes, and the bit that took me longest to accept was the next part.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

8

OttilieCheshire, UK
#10

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10

Gwen DAberystwyth, UK
#11

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

10

MableBolton, UK
#12

the reply above said something I want to sit with for a second.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

13me too 3

AurelBucharest, RO
#13

Reading the reply above, I recognised more of that than I expected to.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

12

InêsPorto, PT
#14

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

6

BobbieRochdale, UK
#15

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

6

NerysRhyl, UK
#16

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

10

NikolaiSofia, BG
#17

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

7

ZoraSarajevo, BA
#18

the reply above — yes, and the bit that took me longest to accept was the next part.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

12

OttilieCheshire, UK
#19

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

6

Gwen DAberystwyth, UK
#20

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

9

BenediktFacilitatorVienna, Austria
#21

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

11

AurelBucharest, RO
#22

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

12