A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Rural access

Ferry timetables and a weekly dose

Started 14 December 2024 · 16 replies · 187 hearts · read 1.7k times

GaelanInverurie, UK · 14 December 2024
1.6 years ago

A question rather than an update: Ferry timetables and a weekly dose

This is the boring administrative kind of problem, which I gather is the kind that actually gets solved.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Not looking for a plan. Just company and whatever anyone has found.

62

DelythBala, UK
#1

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

13

SaffHastings, UK
#2

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

7

SorrelMachynlleth, UK
#3

I did exactly the same and felt terrible about it. You have not done anything wrong.

11

PetraFacilitatorMelbourne, Australia
#4

What the reply above described happened to me too, in a slightly different order.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

14me too 1

BridieWexford, IE
#5

Gently disagreeing with the reply above, or rather adding the other half of it.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

8

BrackAlnwick, UK
#6

Yes to the burping. It is real, it is unbeautiful, and it does settle.

15

Birdie BWhitstable, UK
#7

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

10me too 6

TullaTralee, IE
#8

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

12

SerenLlandudno, UK
#9

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

13

IslaOban, UK
#10

What the reply above described happened to me too, in a slightly different order.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

9

CasperOdense, DK
#11

Reading the reply above, I recognised more of that than I expected to.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

9

TavitaApia, WS
#12

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

6

LeniLeipzig, DE
#13

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

12

OrsolyaBudapest, HU
#14

the reply above said something I want to sit with for a second.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

16

PetraFacilitatorMelbourne, Australia
#15

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

18me too 3

ClémenceNantes, FR
#16

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

14