A three-week buffer, agreed with my GP

Started 13 November 2024 · 19 replies · 212 hearts · read 2.4k times

JuniperMachynlleth, UK · 13 November 2024

1.7 years ago

A three-week buffer, agreed with my GP Writing it down partly to work out what I actually think.

Money post. No apologies, this circle is for it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

The thing that has surprised me most is how much of this is about other people rather than about me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

LlianCarmarthen, UK

Yes to the burping. It is real, it is unbeautiful, and it does settle.

PetraFacilitatorMelbourne, Australia

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

18me too 9

LeniLeipzig, DE

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

BridieWexford, IE

Gently disagreeing with the reply above, or rather adding the other half of it.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

ClémenceNantes, FR

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

13me too 4

NilsUppsala, SE

the reply above said something I want to sit with for a second.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

BessLouth, UK

Building on what the reply above wrote rather than answering the original question.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

RowanInverness, UK

I did exactly the same and felt terrible about it. You have not done anything wrong.

IslaOban, UK

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

IlyaAlmaty, KZ

#10

Gently disagreeing with the reply above, or rather adding the other half of it.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

Birdie BWhitstable, UK

#11

Please do not read the comments under news articles about this. I lost a fortnight to that.

TavitaApia, WS

#12

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

SindriReykjavík, IS

#13

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

13me too 6

BoazHaarlem, NL

#14

What the reply above described happened to me too, in a slightly different order.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

BramGhent, BE

#15

the reply above said something I want to sit with for a second.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

MairéadMayo, IE

#16

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

DelythBala, UK

#17

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

PetraFacilitatorMelbourne, Australia

#18

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

15me too 9

SorrelMachynlleth, UK

#19

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.