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Two systems across the Irish border

Started 5 March 2024 · 22 replies · 274 hearts · read 5k times

MarkCoventry, UK · 5 March 2024
2.4 years ago

A question rather than an update: Two systems across the Irish border

Regional question, because I have read a great deal of advice that turns out to be true in one country only.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

91

NixLeith, UK
#1

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

14

KezWigan, UK
#2

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

14me too 1

AdaFacilitatorManchester, UK
#3

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

21

SolomonManchester, UK
#4

What the reply above described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

13

NerysRhyl, UK
#5

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

13me too 7

GillyWorcester, UK
#6

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

8

TeganNewport, UK
#7

the reply above — yes, and the bit that took me longest to accept was the next part.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

10

BelCroydon, UK
#8

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

6

OsgarKillarney, IE
#9

I did exactly the same and felt terrible about it. You have not done anything wrong.

13

BassCoventry, UK
#10

What the reply above described happened to me too, in a slightly different order.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

8

RayBarnsley, UK
#11

Building on what the reply above wrote rather than answering the original question.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

15

MarthaCork, IE
#12

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

12

GwenBangor, UK
#13

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

17me too 4

TamsinRedruth, UK
#14

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

11

IzzyWatford, UK
#15

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

8

TorKeswick, UK
#16

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

12

SaoirseKilkenny, IE
#17

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

10

RuthieLeicester, UK
#18

the reply above — yes, and the bit that took me longest to accept was the next part.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

15

SorrelMachynlleth, UK
#19

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

10me too 7

BlySheffield, UK
#20

What helped was lowering my own expectations of the week rather than trying to hold the week together.

7

AdaFacilitatorManchester, UK
#21

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

27

BexPlymouth, UK
#22

Please do not read the comments under news articles about this. I lost a fortnight to that.

10