Journal
Brody’s journal
Plumber. Van, ladder, weekly injection.
Reduced
week 102settled energy 43 replies
Reduced to a maintenance dose. Same day, same fridge, less of it. Steady. Nothing happened again. I am aware that is now the fourth month running I have written that, and I…
Iron and B12
week 84pleased energy 53 replies
Three years of results side by side. A trend rather than a moment, which is apparently the only thing worth looking at. Improved. Everything stable. She said come back in a…
Into town and back
week 59pleased energy 31 reply
Got down on the floor and back up again unaided. I have not been able to do that since 2021 and I did it twice more just to check. Full day under a floor without his back…
Two lengths, badly
week 35pleased energy 51 reply
This week: Full shift on my feet and my knees did not stop me. That has not happened in about four years. Walked into town and back, which I stopped doing years ago without…
A printout I cannot read
week 35frustrated energy 22 replies
A locum who had clearly read nothing. I was polite, I got what I needed, and I have booked with my own GP for next month. She reduced one of my other medications. I asked her…
Not writing about this would be dishonest
week 34sore energy 33 replies
Reflux again. I slept propped up on three pillows and woke at two anyway. I have an appointment on Thursday and I am going to actually mention it this time rather than…
The bad fortnight
week 33sore energy 13 replies
This week: Headache for three days running. It turned out I had barely drunk anything since Tuesday. Water, then a slow improvement, then feeling faintly stupid. Very tired.…
No news
week 32fine energy 21 reply
Steady. That is the whole entry. I nearly did not write this week because there was nothing in it. Then I thought about how much I have got out of other people's boring…
A rough few days
week 31sore energy 5
This week: Reflux again. I slept propped up on three pillows and woke at two anyway. I have an appointment on Thursday and I am going to actually mention it this time rather…
A new bin and a plan
week 31organised energy 32 replies
New sharps bin, and a plan for what happens to it when I move in September. Two lines a day in a paper diary. Date, and one thing. That is the entire system and it has twice…
Three cool bags and a thermometer
week 30organised energy 22 replies
This week: Two lines a day in a paper diary. Date, and one thing. That is the entire system and it has twice changed a clinical decision. Anchored injection day to my shift…
I nearly did not write
week 29steady energy 41 reply
This week: I nearly did not write this week because there was nothing in it. Then I thought about how much I have got out of other people's boring weeks. No news. The dog is…
Dreams
week 28foggy energy 24 replies
This week: Repeat study came back and the apnoea is much reduced. Ten years of that mask. The sleep has changed shape rather than improved. Different, not better, and I…
Eight minutes and a chair
week 27tired but good energy 52 replies
Walked instead of the bus all week. Not a programme. Just walking. Grip strength has gone off and I noticed it opening a jar before I noticed it anywhere else. Back to…
Stayed for the company
week 26warm energy 44 replies
The facilitator stopped the room when four of us were talking at once and asked one person how she was actually doing. It changed the whole hour. Somebody new tonight,…
A plain question
week 26steady energy 13 replies
Got something with protein in before nine this morning, which meant the rest of the day did not fall apart at four. Spread it across the day instead of trying to do it all at…
She reduced it
week 25frustrated energy 42 replies
This week: She reduced one of my other medications. I asked her twice whether that was really allowed. Left with a printout I could not read and no idea what to be worried…
Steady
week 24fine energy 43 replies
No news. The dog is well, the weather has been foul, and I have taken my medication on the correct day for the eleventh week running. Quiet. Injection Tuesday, mild…
Circle tonight
week 23warm energy 3
This week: Circle tonight. Eight of us, an hour, and about eleven minutes of actual information. The rest was the point. The facilitator stopped the room when four of us were…
How are you doing on a Wednesday
week 22held energy 34 replies
This week: Nobody has ever asked me how I was doing on a Wednesday before. My buddy noticed something in my journal before I did and asked me a very gentle question about it.…