Journal
Huw’s journal
Steelworks shifts. The 4am staff-room meal problem.
Laces
week 34quietly delighted energy 11 reply
Swam. First time since school. Two lengths, badly, grinning. Up the stairs at work twice without stopping at the landing. I stood at the top for a second like an idiot.…
The list on the fridge
week 32steady energy 23 replies
This week: Got something with protein in before nine this morning, which meant the rest of the day did not fall apart at four. Was undereating without realising. The nurse…
What is your secret
week 31warm energy 31 reply
My mother cooks. That is how she says it. So I eat what I can, slowly, and I say thank you, and we manage. It is not a problem to be solved. A wedding. Three courses I could…
Propped up on pillows
week 30sore energy 33 replies
This week: The burping. Nobody mentions the burping. It is not in any leaflet and it is genuinely one of the odder experiences of my adult life. Sore at the injection site…
Sore and slow
week 29rough energy 4
This week: A rough few days. Not dangerous, just relentlessly unpleasant, the kind of unwell where you cannot read and cannot sleep and cannot settle to anything. A hard…
Quiet
week 28fine energy 33 replies
This week: Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. An unremarkable week. Ate, walked, worked, slept adequately. This is what…
A wedding
week 27loved energy 41 reply
This week: My mother cooks. That is how she says it. So I eat what I can, slowly, and I say thank you, and we manage. It is not a problem to be solved. A wedding. Three…
Two lines a day
week 25organised energy 12 replies
This week: Tested three cool bags against a thermometer this weekend because I am that person. Results written up for the travel circle. Anchored injection day to my shift…
An unremarkable week
week 24steady energy 41 reply
An unremarkable week. Ate, walked, worked, slept adequately. This is what most of it looks like. Nothing to report. Writing it down anyway, on the theory that a journal made…
Three cool bags and a thermometer
week 23organised energy 12 replies
Anchored injection day to my shift pattern rather than to the calendar, which solved a problem I had been feeling guilty about for four months. Tested three cool bags against…
Nothing to report
week 21steady energy 13 replies
This week: Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. Steady. That…
Starters as a main
week 20awkward energy 21 reply
My mother cooks. That is how she says it. So I eat what I can, slowly, and I say thank you, and we manage. It is not a problem to be solved. A wedding. Three courses I could…
Before nine
week 18steady energy 23 replies
Was undereating without realising. The nurse asked a plain question about what I had actually eaten in the last two days and I heard my own answer. Spread it across the day…
She noticed first
week 17held energy 14 replies
Paired up. We text on Sunday nights, four or five lines each, and it has quietly become the most reliable thing in my week. Nobody has ever asked me how I was doing on a…
Grip
week 15tired but good energy 32 replies
This week: Came back after a bad fortnight without trying to make up the lost ground, which is the thing that used to end it for me every time. Walked instead of the bus all…
Six labelled boxes
week 14organised energy 24 replies
This week: Tested three cool bags against a thermometer this weekend because I am that person. Results written up for the travel circle. Anchored injection day to my shift…
Two lines a day
week 13pleased energy 51 reply
This week: Anchored injection day to my shift pattern rather than to the calendar, which solved a problem I had been feeling guilty about for four months. Solved the 4am meal…
A different shape
week 12foggy energy 44 replies
This week: Slept through. Whole night, no waking. It has been so long that I lay there in the morning trying to work out what was different. Waking at four again. Not…
How are you doing on a Wednesday
week 11held energy 24 replies
This week: Nobody has ever asked me how I was doing on a Wednesday before. Paired up. We text on Sunday nights, four or five lines each, and it has quietly become the most…
Steady
week 10flat energy 33 replies
Steady. That is the whole entry. I nearly did not write this week because there was nothing in it. Then I thought about how much I have got out of other people's boring…