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Grief and eating

My prescriber and I paused it for a month

Started 29 June 2025 · 19 replies · 182 hearts · read 2.9k times

BibiRabat, MA · 29 June 2025
about a year ago

My prescriber and I paused it for a month Writing it down partly to work out what I actually think.

Not asking anyone to fix this. Mostly saying it out loud somewhere it will be read kindly.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

The thing that has surprised me most is how much of this is about other people rather than about me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

61

OsgarKillarney, IE
#1

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

8

NoraDublin, IE
#2

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

6

TiborBratislava, SK
#3

What the opening post described happened to me too, in a slightly different order.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

7me too 6

WrenFacilitatorLeeds, UK
#4

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

22

BronwenBarry, UK
#5

What the reply above described happened to me too, in a slightly different order.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

7

NúriaBarcelona, ES
#6

I did exactly the same and felt terrible about it. You have not done anything wrong.

11

MaudGhent, BE
#7

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

6

BibiRabat, MA
#8

Gently disagreeing with the reply above, or rather adding the other half of it.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

10me too 2

OsgarKillarney, IE
#9

What helped was lowering my own expectations of the week rather than trying to hold the week together.

9

NoraDublin, IE
#10

Gently disagreeing with the reply above, or rather adding the other half of it.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

8me too 1

TiborBratislava, SK
#11

the reply above said something I want to sit with for a second.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

9

NerysRhyl, UK
#12

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

11

BronwenBarry, UK
#13

Please do not read the comments under news articles about this. I lost a fortnight to that.

7

NúriaBarcelona, ES
#14

Reading the reply above, I recognised more of that than I expected to.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

13me too 5

MaudGhent, BE
#15

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8

BibiRabat, MA
#16

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

10

OsgarKillarney, IE
#17

the reply above — yes, and the bit that took me longest to accept was the next part.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

7me too 1

TiborBratislava, SK
#19

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

5