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Grief and eating

How I got through the first fortnight

Started 29 June 2025 · 19 replies · 185 hearts · read 3.2k times

NúriaBarcelona, ES · 29 June 2025
about a year ago

Starting a thread on this because it keeps coming up in ones and twos: How I got through the first fortnight

This is a difficult one to write and I have deleted it twice.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

62

NerysRhyl, UK
#1

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

10

WrenFacilitatorLeeds, UK
#2

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

16me too 4

BibiRabat, MA
#3

What the opening post described happened to me too, in a slightly different order.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

9

TiborBratislava, SK
#4

I did exactly the same and felt terrible about it. You have not done anything wrong.

6

NoraDublin, IE
#5

What the reply above described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

9

OsgarKillarney, IE
#6

Please do not read the comments under news articles about this. I lost a fortnight to that.

9

MaudGhent, BE
#7

What helped was lowering my own expectations of the week rather than trying to hold the week together.

8

NúriaBarcelona, ES
#8

Gently disagreeing with the reply above, or rather adding the other half of it.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

6

NerysRhyl, UK
#9

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

11

BronwenBarry, UK
#10

Gently disagreeing with the reply above, or rather adding the other half of it.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

4

BibiRabat, MA
#11

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

8me too 7

TiborBratislava, SK
#12

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

9

NoraDublin, IE
#13

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

11

OsgarKillarney, IE
#14

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

7

MaudGhent, BE
#15

Gently disagreeing with the reply above, or rather adding the other half of it.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

10

NúriaBarcelona, ES
#16

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

11

NerysRhyl, UK
#17

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

8

WrenFacilitatorLeeds, UK
#18

Building on what the reply above wrote rather than answering the original question.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

24me too 8

BibiRabat, MA
#19

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

9