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Long covid and fatigue

Being told to just move more and how I answered

Started 24 January 2025 · 16 replies · 205 hearts · read 2.5k times

BoazHaarlem, NL · 24 January 2025
1.5 years ago

Being told to just move more and how I answered — putting it in its own thread so it does not get lost in the check-in.

Something is going on with my body and I would like to know whether it is ordinary.

The thing that has surprised me most is how much of this is about other people rather than about me.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

68

FionnualaDundalk, IE
#1

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

11

BronteHaworth, UK
#2

the opening post said something I want to sit with for a second.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

8

Building on what the opening post wrote rather than answering the original question.

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

27

PerlaManila, PH
#4

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

7me too 3

BertieHarrogate, UK
#5

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

12

AleksLjubljana, SI
#6

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

9

NadineLyon, FR
#7

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

14

OzrenZagreb, HR
#8

Gently disagreeing with the reply above, or rather adding the other half of it.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

11

IdaRotterdam, NL
#9

Reading the reply above, I recognised more of that than I expected to.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

15me too 1

MorayElgin, UK
#10

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

10

OllyReading, UK
#11

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

12

HuwWrexham, UK
#12

Reading the reply above, I recognised more of that than I expected to.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

9

NolanHalifax, CA
#13

the reply above said something I want to sit with for a second.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

11me too 7

MaeveSligo, IE
#14

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

10

the reply above — yes, and the bit that took me longest to accept was the next part.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

24

DillyNewport, UK
#16

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

15me too 9