Appetite signals came back in an odd shape

Started 24 March 2025 · 23 replies · 231 hearts · read 2.4k times

GwynethAberdare, UK · 24 March 2025

1.3 years ago

A question rather than an update: Appetite signals came back in an odd shape

I have been reading here for a few weeks and have not posted, so this is me posting.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

Not looking for a plan. Just company and whatever anyone has found.

MaeveSligo, IE

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

MinnieDoncaster, UK

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

BenediktFacilitatorVienna, Austria

the reply above — yes, and the bit that took me longest to accept was the next part.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

GwionBangor, UK

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

PeronelCanterbury, UK

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

BrackenHexham, UK

Building on what the reply above wrote rather than answering the original question.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

FenellaCirencester, UK

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

MapleToronto, CA

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

11me too 5

NedChesterfield, UK

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

MattNottingham, UK

#10

Reading the reply above, I recognised more of that than I expected to.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

7me too 8

BettinaGraz, AT

#11

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

BobbieRochdale, UK

#12

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

OndineLausanne, CH

#13

What helped was lowering my own expectations of the week rather than trying to hold the week together.

CassWakefield, UK

#14

Gently disagreeing with the reply above, or rather adding the other half of it.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

HeddaCopenhagen, DK

#15

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

SerenLlandudno, UK

#16

the reply above — yes, and the bit that took me longest to accept was the next part.

Please do not read the comments under news articles about this. I lost a fortnight to that.

10me too 7

GusStirling, UK

#17

What the reply above described happened to me too, in a slightly different order.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

DashSeattle, WA

#18

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

FlorrieBlackburn, UK

#19

Building on what the reply above wrote rather than answering the original question.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

10me too 9

TedIpswich, UK

#20

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

TaviaPalermo, IT

#21

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

BenediktFacilitatorVienna, Austria

#22

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

OttoPrague, CZ

#23

the reply above said something I want to sit with for a second.

I did exactly the same and felt terrible about it. You have not done anything wrong.

8me too 4