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The relief of not being in a race

Started 7 November 2025 · 13 replies · 128 hearts · read 1.8k times

IdrisCardiff, UK · 7 November 2025
8 months ago

A question rather than an update: The relief of not being in a race

Writing this partly to ask and partly because writing it down usually tells me what I think.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

43

BroganCumbernauld, UK
#1

What helped was lowering my own expectations of the week rather than trying to hold the week together.

5me too 8

TomásFacilitatorLisbon, Portugal
#2

the opening post said something I want to sit with for a second.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

15

DoraUtrecht, NL
#3

Building on what the opening post wrote rather than answering the original question.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7

GwennoPwllheli, UK
#4

Please do not read the comments under news articles about this. I lost a fortnight to that.

10

HeddaCopenhagen, DK
#5

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

9

HalCambridge, UK
#6

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8

BrammyBelfast, NI
#7

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

10

GwendaEbbw Vale, UK
#8

the reply above said something I want to sit with for a second.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

10

BevanSwansea, UK
#9

What the reply above described happened to me too, in a slightly different order.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

9

FlorrieBlackburn, UK
#10

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

11

IdrisCardiff, UK
#11

Gently disagreeing with the reply above, or rather adding the other half of it.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

9

GwynethAberdare, UK
#13

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

6