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Two years in at 24 and what I would tell myself

Started 16 June 2025 · 22 replies · 214 hearts · read 3.1k times

GabePhoenix, AZ · 16 June 2025
about a year ago

Two years in at 24 and what I would tell myself — putting it in its own thread so it does not get lost in the check-in.

Practical question, and possibly a silly one.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Thanks all. Genuinely.

71

TallisEly, UK
#1

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

8

TobinCork, IE
#2

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

6

What the opening post described happened to me too, in a slightly different order.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

18

NyalaAddis Ababa, ET
#4

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

13me too 1

OsmanAnkara, TR
#5

What the reply above described happened to me too, in a slightly different order.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

7me too 6

BarnabyWinchester, UK
#6

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

11

FlorrieBlackburn, UK
#7

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

6

NazneenDhaka, BD
#8

Gently disagreeing with the reply above, or rather adding the other half of it.

I did exactly the same and felt terrible about it. You have not done anything wrong.

10

LinneaTurku, FI
#9

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7

TorinBelfast, NI
#10

Gently disagreeing with the reply above, or rather adding the other half of it.

Please do not read the comments under news articles about this. I lost a fortnight to that.

8

TorrinAberdeen, UK
#11

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

8

TildaCambridge, UK
#12

What helped was lowering my own expectations of the week rather than trying to hold the week together.

8

AikoOsaka, JP
#13

the reply above — yes, and the bit that took me longest to accept was the next part.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

10

GwionBangor, UK
#14

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

7me too 7

GabePhoenix, AZ
#15

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

13

TallisEly, UK
#16

Building on what the reply above wrote rather than answering the original question.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

9

TobinCork, IE
#17

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

12me too 3

GwenBangor, UK
#18

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

8

NyalaAddis Ababa, ET
#19

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

8

OsmanAnkara, TR
#20

Building on what the reply above wrote rather than answering the original question.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

9

What the reply above described happened to me too, in a slightly different order.

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

22

FlorrieBlackburn, UK
#22

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

6me too 2