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Living at home and hiding the box

Started 6 June 2025 · 20 replies · 185 hearts · read 3.4k times

TorrinAberdeen, UK · 6 June 2025
about a year ago

Living at home and hiding the box — putting it in its own thread so it does not get lost in the check-in.

The logistics of this are defeating me more than the medicine is.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Thanks all. Genuinely.

62

TobinCork, IE
#1

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

6me too 2

Building on what the opening post wrote rather than answering the original question.

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

23

TallisEly, UK
#3

the reply above said something I want to sit with for a second.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

8

OsmanAnkara, TR
#4

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

10

GwionBangor, UK
#5

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

6

TorinBelfast, NI
#6

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

8

BarnabyWinchester, UK
#7

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

7

NazneenDhaka, BD
#8

Building on what the reply above wrote rather than answering the original question.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

9me too 3

FlorrieBlackburn, UK
#9

the reply above said something I want to sit with for a second.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

10

AikoOsaka, JP
#10

What helped was lowering my own expectations of the week rather than trying to hold the week together.

6

TildaCambridge, UK
#11

Reading the reply above, I recognised more of that than I expected to.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

9me too 8

GabePhoenix, AZ
#12

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

7

NyalaAddis Ababa, ET
#13

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

8

LinneaTurku, FI
#14

the reply above said something I want to sit with for a second.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

10

TorrinAberdeen, UK
#15

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

9

TobinCork, IE
#16

Please do not read the comments under news articles about this. I lost a fortnight to that.

9me too 4

GwenBangor, UK
#17

Building on what the reply above wrote rather than answering the original question.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

7

TallisEly, UK
#18

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

11

GwionBangor, UK
#20

the reply above — yes, and the bit that took me longest to accept was the next part.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

10