Journal
Aria’s journal
Ten hours of flights a year. Cool bag expert now.
Before nine
week 39steady energy 43 replies
Week in order: Was undereating without realising. The nurse asked a plain question about what I had actually eaten in the last two days and I heard my own answer. Protein…
Steady
week 37flat energy 41 reply
Three things this week. Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. An unremarkable week. Ate, walked, worked, slept adequately.…
How are you doing on a Wednesday
week 35held energy 5
Nobody has ever asked me how I was doing on a Wednesday before. She had a bad week and I had a fine one, and next month it will be the other way round. That is the whole…
What is your secret
week 33loved energy 51 reply
Week in order: A wedding. Three courses I could not face, a table of people who noticed, and a very kind waiter who boxed it up without saying a word. Sunday lunch at my…
No mask
week 31rested energy 14 replies
Three things this week. Vivid dreams, every night, the sort you have to sit up and shake off. Two other people in circle have the same and none of us can find anything…
An unremarkable week
week 29steady energy 33 replies
An unremarkable week. Ate, walked, worked, slept adequately. This is what most of it looks like. Nothing to report. Writing it down anyway, on the theory that a journal made…
The bad fortnight
week 27flat energy 33 replies
Week in order: The burping. Nobody mentions the burping. It is not in any leaflet and it is genuinely one of the odder experiences of my adult life. Very tired. Not the kind…
Propped up on pillows
week 26sore energy 43 replies
Three things this week. A rough few days. Not dangerous, just relentlessly unpleasant, the kind of unwell where you cannot read and cannot sleep and cannot settle to…
Across the day
week 25steady energy 13 replies
Protein first, everything else after. It is not interesting advice and it is the only advice that has changed anything. Was undereating without realising. The nurse asked a…
Slept through
week 23tired energy 5
Vivid dreams, every night, the sort you have to sit up and shake off. Two other people in circle have the same and none of us can find anything written about it. Repeat study…
Dreams
week 21tired energy 14 replies
Week in order: Vivid dreams, every night, the sort you have to sit up and shake off. Two other people in circle have the same and none of us can find anything written about…
A printout I cannot read
week 19heard energy 22 replies
Nine minutes. I took three written questions and got three answers, which is the best return I have ever had from an appointment. She reduced one of my other medications. I…
No news
week 17flat energy 11 reply
Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. Steady. That is the…
A different shape
week 15tired energy 54 replies
Three things this week. Vivid dreams, every night, the sort you have to sit up and shake off. Two other people in circle have the same and none of us can find anything…
She reduced it
week 13brisk energy 52 replies
Week in order: She reduced one of my other medications. I asked her twice whether that was really allowed. Took the diary in. She read it properly, which I had not expected,…
A plain question
week 11steady energy 13 replies
Three things this week. Was undereating without realising. The nurse asked a plain question about what I had actually eaten in the last two days and I heard my own answer.…
Eight hours of difference
week 9knackered energy 23 replies
Time difference of eight hours and a weekly dose. Moved it forward by two hours a day rather than all at once, on my GP's suggestion. Auckland to London with a cool bag.…
Back without making it up
week 7tired but good energy 12 replies
Grip strength has gone off and I noticed it opening a jar before I noticed it anywhere else. Back to loading properly. Eight minutes and a chair. That is the whole programme.…
Steady
week 5fine energy 33 replies
Steady. That is the whole entry. I nearly did not write this week because there was nothing in it. Then I thought about how much I have got out of other people's boring…
Day one
week 3wired energy 43 replies
Three things this week. Day one. I am writing this partly because somebody else's day-one entry is the reason I felt able to do it at all, and it seems only fair to leave one…