Journal
Toby’s journal
Cooking for four when I want none of it.
Nothing happened again
week 97settled energy 22 replies
Two years. My only news is that there is no news, and I have come back specifically to say so, because nobody wrote this part down for me. Steady, still cooking, still not…
Iron and B12
week 79relieved energy 52 replies
Ten minutes then I am asleep. Iron and B12 both low. Treated. The difference in a fortnight was not subtle. Fine. Bloods back. Unremarkable, she said, which is a word I had…
Sore and slow
week 60sore energy 24 replies
Bad week and I am writing it down anyway, because a journal that only contains the good weeks would be a lie and no use to anybody reading it later. A bad fortnight during…
An unremarkable week
week 42flat energy 53 replies
Ten minutes then I am asleep. An unremarkable week. Ate, walked, worked, slept adequately. This is what most of it looks like. Quiet. Injection Tuesday, mild Wednesday, fine…
Two flights of stairs
week 41grateful energy 23 replies
Full shift on my feet and my knees did not stop me. That has not happened in about four years. Walked into town and back, which I stopped doing years ago without ever…
Somebody new
week 40warm energy 2
Quickly, before bed. Somebody new tonight, terrified, exactly where I was in the spring. I said the thing that had been said to me and watched it land. The facilitator…
Two lengths, badly
week 39grateful energy 14 replies
Quickly, before bed. Sat on the floor and played for an hour, and then got up. That was the entire reason I started, and I have now done it. Played football with both…
Nothing to report
week 39steady energy 53 replies
Ten minutes then I am asleep. Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. No news. The dog is well, the weather has been foul, and…
A plain question
week 39steady energy 53 replies
Ten minutes then I am asleep. I have found five things I can get down when nothing appeals and I have written them on the fridge. That list is the most useful thing I own.…
Steady
week 37fine energy 53 replies
Quickly, before bed. No news. The dog is well, the weather has been foul, and I have taken my medication on the correct day for the eleventh week running. I nearly did not…
Flat, whole night
week 37quietly delighted energy 21 reply
Quickly, before bed. Carried both bags up in one go. Small thing. Wrote it down. Full shift on my feet and my knees did not stop me. That has not happened in about four…
She reduced it
week 36brisk energy 52 replies
She reduced one of my other medications. I asked her twice whether that was really allowed. Took the diary in. She read it properly, which I had not expected, and changed the…
Starters as a main
week 34warm energy 11 reply
A wedding. Three courses I could not face, a table of people who noticed, and a very kind waiter who boxed it up without saying a word. Sunday lunch at my grandmother's.…
Across the day
week 33steady energy 23 replies
Quickly, before bed. Got something with protein in before nine this morning, which meant the rest of the day did not fall apart at four. Protein first, everything else after.…
Eight minutes and a chair
week 32tired but good energy 12 replies
Ten minutes then I am asleep. Eight minutes and a chair. That is the whole programme. Tuesday and Friday. I have done it for eleven weeks. Grip strength has gone off and I…
Slept through
week 31foggy energy 24 replies
Repeat study came back and the apnoea is much reduced. Ten years of that mask. The sleep has changed shape rather than improved. Different, not better, and I cannot yet tell…
A printout I cannot read
week 30brisk energy 32 replies
Quickly, before bed. Took the diary in. She read it properly, which I had not expected, and changed the plan because of it. Left with a printout I could not read and no idea…
Two lines a day
week 29organised energy 32 replies
Ten minutes then I am asleep. Batch cooked on a good day for the bad days. Six labelled boxes in the freezer and a great deal of smugness. New sharps bin, and a plan for what…
My mother cooks
week 29loved energy 21 reply
Ten minutes then I am asleep. A wedding. Three courses I could not face, a table of people who noticed, and a very kind waiter who boxed it up without saying a word. Sunday…
A locum
week 28frustrated energy 12 replies
Ten minutes then I am asleep. Left with a printout I could not read and no idea what to be worried about. Taking it to bloodwork-buddies on Thursday. Asked the question I had…