Journal
Viv’s journal
Reflux was my whole first year. It got better.
Off the floor
week 47quietly delighted energy 54 replies
Well then. Carried both bags up in one go. Small thing. Wrote it down. Slept flat. Wrote one line: "Flat. Whole night. Flat." Slept flat. Whole night. Flat. Up the stairs at…
Steady
week 47flat energy 43 replies
Well then. No news. The dog is well, the weather has been foul, and I have taken my medication on the correct day for the eleventh week running. Quiet. Injection Tuesday,…
Nothing to report
week 45fine energy 53 replies
Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. An unremarkable week. Ate, walked, worked, slept adequately. This is what most of it…
An hour on the floor
week 43pleased energy 51 reply
Right. Swam. First time since school. Two lengths, badly, grinning. Walked into town and back, which I stopped doing years ago without ever deciding to stop. Got down on the…
Into town and back
week 41grateful energy 21 reply
Well then. Sat on the floor and played for an hour, and then got up. That was the entire reason I started, and I have now done it. Carried both bags up in one go. Small…
Dreams
week 39tired energy 1
Well then. Slept through. Whole night, no waking. It has been so long that I lay there in the morning trying to work out what was different. The sleep has changed shape…
An unremarkable week
week 37fine energy 33 replies
Well then. An unremarkable week. Ate, walked, worked, slept adequately. This is what most of it looks like. Nothing to report. Writing it down anyway, on the theory that a…
Quiet
week 34steady energy 23 replies
Well then. Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. Steady. That…
Nine minutes
week 33brisk energy 12 replies
Right. Took the diary in. She read it properly, which I had not expected, and changed the plan because of it. She reduced one of my other medications. I asked her twice…
No mask
week 30rested energy 54 replies
Right. Slept through. Whole night, no waking. It has been so long that I lay there in the morning trying to work out what was different. The sleep has changed shape rather…
No hurry
week 28wary energy 2
Well then. I have been at the same step for five months and every clinician I meet seems mildly surprised. It is working. I am not moving. Third day after the change is…
Back down a step
week 26steady energy 31 reply
Right. Third day after the change is always the worst and I have finally stopped being surprised by it. Knowing it is coming does not make it pleasant, but it does make it…
Anchored to the shifts
week 24organised energy 32 replies
Well then. New sharps bin, and a plan for what happens to it when I move in September. Tested three cool bags against a thermometer this weekend because I am that person.…
Two flights of stairs
week 22pleased energy 51 reply
Tied my own laces standing up. I am aware of how that sounds and I do not care. Swam. First time since school. Two lengths, badly, grinning. Walked into town and back, which…
A new bin and a plan
week 21organised energy 52 replies
Right. Tested three cool bags against a thermometer this weekend because I am that person. Results written up for the travel circle. Small logistics win: worked out where the…
Where the pen lives
week 19organised energy 42 replies
Small logistics win: worked out where the pen actually lives in a fridge shared with four other people and a toddler's yoghurts. Batch cooked on a good day for the bad days.…
Anchored to the shifts
week 17organised energy 12 replies
Well then. Batch cooked on a good day for the bad days. Six labelled boxes in the freezer and a great deal of smugness. Anchored injection day to my shift pattern rather than…
A printout I cannot read
week 15brisk energy 34 replies
Well then. She reduced one of my other medications. I asked her twice whether that was really allowed. Her GP took it seriously, investigated, and treated it. Nine minutes. I…
Stayed for the company
week 13warm energy 14 replies
Well then. The facilitator stopped the room when four of us were talking at once and asked one person how she was actually doing. It changed the whole hour. Circle tonight.…
The list on the fridge
week 11steady energy 33 replies
Right. Protein first, everything else after. It is not interesting advice and it is the only advice that has changed anything. I have found five things I can get down when…