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Long covid and fatigue

Sleep that does not restore, plus a new sleep pattern

Started 20 June 2025 · 15 replies · 177 hearts · read 3.6k times

SolomonManchester, UK · 20 June 2025
about a year ago

Sleep that does not restore, plus a new sleep pattern Writing it down partly to work out what I actually think.

Something is going on with my body and I would like to know whether it is ordinary.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Sorry for the length. If anyone has been here, I would very much like to hear it.

59

TobinCork, IE
#1

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

9

SamPortland, OR
#2

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

10

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

23me too 1

HalCambridge, UK
#4

Gently disagreeing with the reply above, or rather adding the other half of it.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

9

TemSouthend, UK
#5

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

8

PersisBristol, UK
#6

the reply above said something I want to sit with for a second.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

8me too 5

PeronelCanterbury, UK
#7

Building on what the reply above wrote rather than answering the original question.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

11

HarriSwansea, UK
#8

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

10

HattieExeter, UK
#9

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

7

BodhiByron Bay, AU
#10

Gently disagreeing with the reply above, or rather adding the other half of it.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

10

NyalaAddis Ababa, ET
#11

the reply above — yes, and the bit that took me longest to accept was the next part.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

11

MapleToronto, CA
#12

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

13

AshSunderland, UK
#13

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

8

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

28me too 3

BoazHaarlem, NL
#15

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

12