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Nobody in my clinic had heard of doing it this way

Started 16 July 2024 · 24 replies · 296 hearts · read 4.1k times

DoraUtrecht, NL · 16 July 2024
2 years ago

Starting a thread on this because it keeps coming up in ones and twos: Nobody in my clinic had heard of doing it this way

I have been reading here for a few weeks and have not posted, so this is me posting.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

99

BrammyBelfast, NI
#1

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

9

GwendaEbbw Vale, UK
#2

Yes to the burping. It is real, it is unbeautiful, and it does settle.

12

GwynethAberdare, UK
#3

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

14me too 2

TomásFacilitatorLisbon, Portugal
#4

Building on what the reply above wrote rather than answering the original question.

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

20

IdrisCardiff, UK
#5

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

16

BroganCumbernauld, UK
#6

Reading the reply above, I recognised more of that than I expected to.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

11

GwennoPwllheli, UK
#7

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

14

BevanSwansea, UK
#8

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

9me too 5

HeddaCopenhagen, DK
#9

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

9me too 8

HalCambridge, UK
#10

Reading the reply above, I recognised more of that than I expected to.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

11

DoraUtrecht, NL
#11

What helped was lowering my own expectations of the week rather than trying to hold the week together.

7

BrammyBelfast, NI
#12

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

12

GwendaEbbw Vale, UK
#13

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

6me too 6

GwynethAberdare, UK
#14

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

11

FlorrieBlackburn, UK
#15

What the reply above described happened to me too, in a slightly different order.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

16

IdrisCardiff, UK
#16

I did exactly the same and felt terrible about it. You have not done anything wrong.

9

BroganCumbernauld, UK
#17

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

12

GwennoPwllheli, UK
#18

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

10me too 2

BevanSwansea, UK
#19

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

12me too 7

HeddaCopenhagen, DK
#20

the reply above said something I want to sit with for a second.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

13

HalCambridge, UK
#21

the reply above — yes, and the bit that took me longest to accept was the next part.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

15

DoraUtrecht, NL
#22

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

10

TomásFacilitatorLisbon, Portugal
#23

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

26

GwendaEbbw Vale, UK
#24

What the reply above described happened to me too, in a slightly different order.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

12me too 5