Slow is boring and boring is working

Started 10 July 2024 · 24 replies · 284 hearts · read 4.4k times

GwendaEbbw Vale, UK · 10 July 2024

2 years ago

Starting a thread on this because it keeps coming up in ones and twos: Slow is boring and boring is working

I have been reading here for a few weeks and have not posted, so this is me posting.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

The thing that has surprised me most is how much of this is about other people rather than about me.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

BrammyBelfast, NI

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8me too 6

IdrisCardiff, UK

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

BevanSwansea, UK

Please do not read the comments under news articles about this. I lost a fortnight to that.

TomásFacilitatorLisbon, Portugal

Building on what the reply above wrote rather than answering the original question.

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

GwennoPwllheli, UK

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

GwynethAberdare, UK

Reading the reply above, I recognised more of that than I expected to.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

11me too 9

BroganCumbernauld, UK

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

DoraUtrecht, NL

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

HeddaCopenhagen, DK

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

HalCambridge, UK

#10

Reading the reply above, I recognised more of that than I expected to.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

GwendaEbbw Vale, UK

#11

Building on what the reply above wrote rather than answering the original question.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

BrammyBelfast, NI

#12

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

IdrisCardiff, UK

#13

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

BevanSwansea, UK

#14

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

FlorrieBlackburn, UK

#15

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

GwennoPwllheli, UK

#16

the reply above said something I want to sit with for a second.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

GwynethAberdare, UK

#17

Reading the reply above, I recognised more of that than I expected to.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

11me too 4

BroganCumbernauld, UK

#18

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

DoraUtrecht, NL

#19

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

HeddaCopenhagen, DK

#20

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

HalCambridge, UK

#21

Yes to the burping. It is real, it is unbeautiful, and it does settle.

GwendaEbbw Vale, UK

#22

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

12me too 6

TomásFacilitatorLisbon, Portugal

#23

the reply above said something I want to sit with for a second.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

IdrisCardiff, UK

#24

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.