Journal
Ozzy’s journal
Southern hemisphere. Our summers ruin the cool bag advice.
Just Wednesdays
week 97settled energy 44 replies
Well then. Two years. My only news is that there is no news, and I have come back specifically to say so, because nobody wrote this part down for me. Steady. Wednesdays are…
An hour on the floor
week 89pleased energy 21 reply
Right. Tied my own laces standing up. I am aware of how that sounds and I do not care. Swam. First time since school. Two lengths, badly, grinning. Walked into town and back,…
A printout I cannot read
week 86heard energy 22 replies
Well then. Nine minutes. I took three written questions and got three answers, which is the best return I have ever had from an appointment. Took the diary in. She read it…
No mask
week 82foggy energy 44 replies
Repeat study came back and the apnoea is much reduced. Ten years of that mask. Vivid dreams, every night, the sort you have to sit up and shake off. Two other people in…
Two lines a day
week 79organised energy 24 replies
Right. Anchored injection day to my shift pattern rather than to the calendar, which solved a problem I had been feeling guilty about for four months. New sharps bin, and a…
Anchored to the shifts
week 76pleased energy 41 reply
Right. New sharps bin, and a plan for what happens to it when I move in September. Second summer, better solution, published. Small logistics win: worked out where the pen…
She read the diary
week 76frustrated energy 42 replies
Right. Took the diary in. She read it properly, which I had not expected, and changed the plan because of it. Asked the question I had been avoiding for eleven years. She…
An unremarkable week
week 73flat energy 11 reply
Well then. Steady. That is the whole entry. Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression…
Six labelled boxes
week 70organised energy 12 replies
Right. Small logistics win: worked out where the pen actually lives in a fridge shared with four other people and a toddler's yoghurts. Anchored injection day to my shift…
Where the pen lives
week 67organised energy 52 replies
Anchored injection day to my shift pattern rather than to the calendar, which solved a problem I had been feeling guilty about for four months. New sharps bin, and a plan for…
Quiet
week 64fine energy 53 replies
Right. Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. An unremarkable…
Starters as a main
week 61loved energy 11 reply
Right. My mother cooks. That is how she says it. So I eat what I can, slowly, and I say thank you, and we manage. It is not a problem to be solved. Sunday lunch at my…
A different shape
week 58rested energy 34 replies
Right. Repeat study came back and the apnoea is much reduced. Ten years of that mask. Vivid dreams, every night, the sort you have to sit up and shake off. Two other people…
Slept through
week 56tired energy 42 replies
Well then. Repeat study came back and the apnoea is much reduced. Ten years of that mask. CPAP pressure reduced. Vivid dreams, every night, the sort you have to sit up and…
No news
week 55steady energy 51 reply
Right. An unremarkable week. Ate, walked, worked, slept adequately. This is what most of it looks like. Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a…
I nearly did not write
week 52flat energy 43 replies
Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. No news. The dog is well, the weather has been foul, and I have taken my medication on…
Back without making it up
week 49tired but good energy 12 replies
Right. Grip strength has gone off and I noticed it opening a jar before I noticed it anywhere else. Back to loading properly. Eight minutes and a chair. That is the whole…
She reduced it
week 46brisk energy 22 replies
Asked the question I had been avoiding for eleven years. She answered it in about ninety seconds and was completely unbothered. Nine minutes. I took three written questions…
The limits of yoghurt
week 43steady energy 33 replies
Well then. I have found five things I can get down when nothing appeals and I have written them on the fridge. That list is the most useful thing I own. Protein first,…
Three cool bags and a thermometer
week 41organised energy 52 replies
Well then. New sharps bin, and a plan for what happens to it when I move in September. Small logistics win: worked out where the pen actually lives in a fridge shared with…