Journal
Sam’s journal
Titrating at half the usual pace and finally not miserable.
The question I had been avoiding
week 36brisk energy 4
Notes for the week. Took the diary in. She read it properly, which I had not expected, and changed the plan because of it. Asked the question I had been avoiding for eleven…
Eight minutes and a chair
week 34tired but good energy 32 replies
Notes for the week. Walked instead of the bus all week. Not a programme. Just walking. Two sessions this week, both short, both done. Ren keeps saying that two a week for two…
Fewer, heavier
week 33tired but good energy 42 replies
Recording this for the record. Two sessions this week, both short, both done. Ren keeps saying that two a week for two years beats a perfect programme abandoned in March, and…
Nothing to report
week 32fine energy 31 reply
Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. I nearly did not write this week because there was nothing in it. Then I thought about…
An unremarkable week
week 30fine energy 23 replies
I nearly did not write this week because there was nothing in it. Then I thought about how much I have got out of other people's boring weeks. Nothing to report. Writing it…
She noticed first
week 29held energy 44 replies
Notes for the week. She had a bad week and I had a fine one, and next month it will be the other way round. That is the whole mechanism. Nobody has ever asked me how I was…
Slept through
week 27tired energy 51 reply
Notes for the week. The sleep has changed shape rather than improved. Different, not better, and I cannot yet tell whether I mind. CPAP pressure reduced at his review. He…
Quiet
week 26steady energy 11 reply
Notes for the week. Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing.…
No news
week 24flat energy 33 replies
Notes for the week. Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. I nearly did not write this week because there was nothing in it.…
A plain question
week 22steady energy 13 replies
Protein first, everything else after. It is not interesting advice and it is the only advice that has changed anything. I have found five things I can get down when nothing…
Unpleasant, not dangerous
week 20flat energy 32 replies
Recording this for the record. The nausea has a shape to it now. Thursday teatime it starts, Friday it peaks, Saturday afternoon it lifts. Once I could see the pattern it…
What is your secret
week 19awkward energy 31 reply
Notes for the week. Somebody asked what my secret was and I froze completely. Still working out what I want to say to that. Starters as a main course, permanently. No…
Propped up on pillows
week 18flat energy 51 reply
The nausea has a shape to it now. Thursday teatime it starts, Friday it peaks, Saturday afternoon it lifts. Once I could see the pattern it stopped feeling like something…
An hour on the floor
week 17quietly delighted energy 41 reply
Walked into town and back, which I stopped doing years ago without ever deciding to stop. Full shift on my feet and my knees did not stop me. That has not happened in about…
Walking
week 15tired but good energy 12 replies
Eight minutes and a chair. That is the whole programme. Tuesday and Friday. I have done it for eleven weeks. Grip strength has gone off and I noticed it opening a jar before…
No hurry
week 14steady energy 23 replies
Third day after the change is always the worst and I have finally stopped being surprised by it. Knowing it is coming does not make it pleasant, but it does make it…
The third day
week 12steady energy 1
Asked about going slower and was braced for a fight I did not get. She said plenty of people do better on a longer step and wrote it down. I had spent a week rehearsing an…
Back down a step
week 11braced energy 12 replies
I have been at the same step for five months and every clinician I meet seems mildly surprised. It is working. I am not moving. Three weeks per step instead of four,…
She stopped the room
week 11warm energy 34 replies
Notes for the week. Went for the practical answers and stayed for the company, which I gather is what everybody does. The facilitator stopped the room when four of us were…
I nearly did not write
week 9steady energy 51 reply
Recording this for the record. I nearly did not write this week because there was nothing in it. Then I thought about how much I have got out of other people's boring weeks.…