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Journal

Zoë’s journal

Twenty-six, paying out of pocket, watching every penny.

28 entries from 17 Dec 2024 to 14 Jun 2026 · Hackney, UK

  • An unremarkable week

    Sunday 14 Jun 2026week 80steady energy 51 reply

    I nearly did not write this week because there was nothing in it. Then I thought about how much I have got out of other people's boring weeks. Steady-ish, still budgeting,…

  • Two lengths, badly

    Wednesday 11 Mar 2026week 67pleased energy 13 replies

    Quickly, before bed. Walked into town and back, which I stopped doing years ago without ever deciding to stop. Rode the Dunwich Dynamo. Two hundred kilometres, one very tired…

  • I nearly did not write

    Saturday 21 Feb 2026week 64flat energy 51 reply

    Ten minutes then I am asleep. Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole…

  • An unremarkable week

    Sunday 1 Feb 2026week 61fine energy 13 replies

    Ten minutes then I am asleep. Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. I nearly did not write this week because there was…

  • Anchored to the shifts

    Saturday 10 Jan 2026week 58organised energy 52 replies

    Ten minutes then I am asleep. New sharps bin, and a plan for what happens to it when I move in September. Batch cooked on a good day for the bad days. Six labelled boxes in…

  • I nearly did not write

    Sunday 21 Dec 2025week 55fine energy 53 replies

    Quickly, before bed. I nearly did not write this week because there was nothing in it. Then I thought about how much I have got out of other people's boring weeks. Nothing to…

  • Back

    Tuesday 2 Dec 2025week 53nervous energy 14 replies

    Ten minutes then I am asleep. Back. Eight months away and I arrived braced for a judgement that has not come from a single person. The shame about the gap was worse than any…

  • The shame was the worst of it

    Friday 21 Nov 2025week 51nervous energy 14 replies

    Ten minutes then I am asleep. Starting from the bottom again, which my prescriber was firm about and which I am now grateful for. Restarted when she picked up more shifts.…

  • An unremarkable week

    Tuesday 11 Nov 2025week 50fine energy 43 replies

    Quickly, before bed. Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing.…

  • Walking

    Monday 20 Oct 2025week 46tired but good energy 12 replies

    Quickly, before bed. Eight minutes and a chair. That is the whole programme. Tuesday and Friday. I have done it for eleven weeks. Grip strength has gone off and I noticed it…

  • Six months off

    Monday 29 Sep 2025week 43calm energy 13 replies

    Last dose was three weeks ago. Appetite is coming back in a shape I recognise and I am watching it with interest rather than fear, mostly. I could not afford it. That is the…

  • Not properly consulted

    Saturday 20 Sep 2025week 42resolved energy 34 replies

    Quickly, before bed. Last dose was three weeks ago. Appetite is coming back in a shape I recognise and I am watching it with interest rather than fear, mostly. Paused for two…

  • I nearly did not write

    Tuesday 9 Sep 2025week 41fine energy 21 reply

    Quickly, before bed. Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. I nearly did not write this week because there was nothing in it.…

  • Flat, whole night

    Tuesday 19 Aug 2025week 38quietly delighted energy 31 reply

    Tied my own laces standing up. I am aware of how that sounds and I do not care. Full shift on my feet and my knees did not stop me. That has not happened in about four years.…

  • A locum

    Monday 28 Jul 2025week 34brisk energy 42 replies

    Nine minutes. I took three written questions and got three answers, which is the best return I have ever had from an appointment. Asked the question I had been avoiding for…

  • An unremarkable week

    Saturday 5 Jul 2025week 31fine energy 23 replies

    Quickly, before bed. I nearly did not write this week because there was nothing in it. Then I thought about how much I have got out of other people's boring weeks. Nothing to…

  • My mother cooks

    Monday 23 Jun 2025week 29warm energy 12 replies

    Ten minutes then I am asleep. My mother cooks. That is how she says it. So I eat what I can, slowly, and I say thank you, and we manage. It is not a problem to be solved.…

  • The list on the fridge

    Sunday 15 Jun 2025week 28steady energy 23 replies

    Ten minutes then I am asleep. Protein first, everything else after. It is not interesting advice and it is the only advice that has changed anything. I have found five things…

  • The question I had been avoiding

    Monday 26 May 2025week 25heard energy 52 replies

    Quickly, before bed. Asked the question I had been avoiding for eleven years. She answered it in about ninety seconds and was completely unbothered. Took the diary in. She…

  • Unpleasant, not dangerous

    Monday 5 May 2025week 22flat energy 11 reply

    Quickly, before bed. Constipation, which I have avoided writing about for six weeks out of pure squeamishness. It is the thing making me most miserable and I have said…