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Long covid and fatigue

Eating enough on a bad week when cooking is impossible

Started 14 May 2025 · 20 replies · 214 hearts · read 3.2k times

GroverPortland, ME · 14 May 2025
about a year ago

Starting a thread on this because it keeps coming up in ones and twos: Eating enough on a bad week when cooking is impossible

I have avoided asking about this for six weeks out of pure embarrassment.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Thanks all. Genuinely.

71

TamGlasgow, UK
#1

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

11

Gently disagreeing with the opening post, or rather adding the other half of it.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

15me too 7

BrunoMilan, IT
#3

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

10

SolomonManchester, UK
#4

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

13

TychoLeiden, NL
#5

What helped was lowering my own expectations of the week rather than trying to hold the week together.

7

HuwWrexham, UK
#6

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

12

BunnyWeston-super-Mare, UK
#7

What the reply above described happened to me too, in a slightly different order.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

8

HarriSwansea, UK
#8

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

10

HarlanDenver, CO
#9

What the reply above described happened to me too, in a slightly different order.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

7

TemSouthend, UK
#10

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

12

AshSunderland, UK
#11

the reply above said something I want to sit with for a second.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

12

HollyBath, UK
#12

Yes to the burping. It is real, it is unbeautiful, and it does settle.

7

MaisieScarborough, UK
#13

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

9

TeganNewport, UK
#14

Reading the reply above, I recognised more of that than I expected to.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

5me too 2

WystanCheltenham, UK
#15

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

12

FitzLimerick, IE
#16

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

14

NorahDerry, NI
#17

the reply above — yes, and the bit that took me longest to accept was the next part.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

9me too 7

MaritGroningen, NL
#18

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

11

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

16

CassWakefield, UK
#20

Please do not read the comments under news articles about this. I lost a fortnight to that.

14