What helped and what did not, honestly

Started 19 September 2024 · 24 replies · 285 hearts · read 4.9k times

BramwellRipon, UK · 19 September 2024

1.8 years ago

A question rather than an update: What helped and what did not, honestly

I have been reading here for a few weeks and have not posted, so this is me posting.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

BertrandToulouse, FR

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

IzoldaVilnius, LT

Yes to the burping. It is real, it is unbeautiful, and it does settle.

11me too 9

AdaFacilitatorManchester, UK

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

NkechiAbuja, NG

What the reply above described happened to me too, in a slightly different order.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

StefanZurich, CH

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

TanviMumbai, IN

What the reply above described happened to me too, in a slightly different order.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

BassCoventry, UK

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

13me too 7

TiborBratislava, SK

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

Obi OEnugu, NG

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

BrunoMilan, IT

#10

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

TasnimBradford, UK

#11

What the reply above described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

PolaGdańsk, PL

#12

Please do not read the comments under news articles about this. I lost a fortnight to that.

TarqWindsor, UK

#13

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

6me too 3

OsmanAnkara, TR

#14

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

TamzinPoole, UK

#15

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

OzrenZagreb, HR

#16

Gently disagreeing with the reply above, or rather adding the other half of it.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

ShadeIbadan, NG

#17

Building on what the reply above wrote rather than answering the original question.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

PerduMontpellier, FR

#18

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

12me too 8

TacitaRome, IT

#19

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

PeronelCanterbury, UK

#20

the reply above — yes, and the bit that took me longest to accept was the next part.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

9me too 7

BramSheffield, UK

#21

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

TiernanOmagh, NI

#22

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

7me too 4

AdaFacilitatorManchester, UK

#23

the reply above — yes, and the bit that took me longest to accept was the next part.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

NyalaAddis Ababa, ET

#24

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?