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Journal

Hattie’s journal

Chronic fatigue plus this. Careful pacing.

46 entries from 30 Jun 2024 to 22 Feb 2026 · Exeter, UK

  • Nothing happened again

    Sunday 22 Feb 2026week 87flat energy 3

    Late, and writing anyway. Wednesdays are just Wednesdays now. Steady. Nothing happened again. I am aware that is now the fourth month running I have written that, and I have…

  • Two flights of stairs

    Saturday 23 Aug 2025week 60grateful energy 3

    Late, and writing anyway. Sat on the floor and played for an hour, and then got up. That was the entire reason I started, and I have now done it. Walked to the Quay and back…

  • I nearly did not write

    Monday 14 Jul 2025week 55flat energy 13 replies

    Short one tonight. Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. No news. The dog is well, the weather has been foul, and I have…

  • An unremarkable week

    Thursday 3 Jul 2025week 53fine energy 23 replies

    Late, and writing anyway. No news. The dog is well, the weather has been foul, and I have taken my medication on the correct day for the eleventh week running. I nearly did…

  • I nearly did not write

    Sunday 22 Jun 2025week 52steady energy 53 replies

    A quiet week. I nearly did not write this week because there was nothing in it. Then I thought about how much I have got out of other people's boring weeks. Steady. That is…

  • My mother cooks

    Wednesday 11 Jun 2025week 50awkward energy 51 reply

    Starters as a main course, permanently. No explanation offered, none requested. My mother cooks. That is how she says it. So I eat what I can, slowly, and I say thank you,…

  • An unremarkable week

    Wednesday 4 Jun 2025week 49steady energy 13 replies

    Short one tonight. Steady. That is the whole entry. Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false…

  • An hour on the floor

    Sunday 25 May 2025week 48grateful energy 31 reply

    A quiet week. Up the stairs at work twice without stopping at the landing. I stood at the top for a second like an idiot. Nobody saw. It counted. Walked into town and back,…

  • Anchored to the shifts

    Thursday 15 May 2025week 46organised energy 52 replies

    Late, and writing anyway. Anchored injection day to my shift pattern rather than to the calendar, which solved a problem I had been feeling guilty about for four months.…

  • Starters as a main

    Wednesday 7 May 2025week 45awkward energy 11 reply

    A quiet week. Starters as a main course, permanently. No explanation offered, none requested. My mother cooks. That is how she says it. So I eat what I can, slowly, and I say…

  • The question I had been avoiding

    Sunday 27 Apr 2025week 44frustrated energy 4

    Late, and writing anyway. Nine minutes. I took three written questions and got three answers, which is the best return I have ever had from an appointment. Took the diary in.…

  • Awake at four

    Friday 18 Apr 2025week 42rested energy 44 replies

    Late, and writing anyway. The sleep has changed shape rather than improved. Different, not better, and I cannot yet tell whether I mind. Repeat study came back and the apnoea…

  • A new bin and a plan

    Wednesday 9 Apr 2025week 41organised energy 52 replies

    Tested three cool bags against a thermometer this weekend because I am that person. Results written up for the travel circle. Anchored injection day to my shift pattern…

  • Where the pen lives

    Monday 31 Mar 2025week 40organised energy 32 replies

    Anchored injection day to my shift pattern rather than to the calendar, which solved a problem I had been feeling guilty about for four months. Tested three cool bags against…

  • Somebody new

    Thursday 20 Mar 2025week 38warm energy 34 replies

    Late, and writing anyway. Somebody new tonight, terrified, exactly where I was in the spring. I said the thing that had been said to me and watched it land. Went for the…

  • She noticed first

    Tuesday 11 Mar 2025week 37held energy 54 replies

    She had a bad week and I had a fine one, and next month it will be the other way round. That is the whole mechanism. Paired up. We text on Sunday nights, four or five lines…

  • Anchored to the shifts

    Monday 10 Mar 2025week 37pleased energy 23 replies

    Late, and writing anyway. Tested three cool bags against a thermometer this weekend because I am that person. Results written up for the travel circle. Batch cooking on good…

  • Eight minutes and a chair

    Tuesday 4 Mar 2025week 36tired but good energy 4

    Late, and writing anyway. Kept the two sessions that matter and dropped the two that were vanity. Fewer, heavier, done. Grip strength has gone off and I noticed it opening a…

  • She read the diary

    Friday 21 Feb 2025week 34brisk energy 22 replies

    Short one tonight. Took the diary in. She read it properly, which I had not expected, and changed the plan because of it. Asked the question I had been avoiding for eleven…

  • I nearly did not write

    Thursday 13 Feb 2025week 33fine energy 33 replies

    A quiet week. Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. An…